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    Archive for the ‘Policy’ Category

    Thursday, December 31st, 2015

    Controversial New Regulations Proposed to Require Consent for All Tissue Research. Rebecca Skloot’s new OpEd Urges Action

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    Your cells and genetic information can be used in research without your knowledge — this happens all the time. It leads to important medical advances […]

    Sunday, May 17th, 2009

    Patent Dispute Prevents Patients From Getting Promising Drug for Lou Gehrig’s Disease


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    Speaking of the debate over patents interfering with medical care: A promising new drug for treating Lou Gehrig’s disease (ALS) is not available to patients due to a patent dispute.

    Friday, May 15th, 2009

    New Breast Cancer Gene Lawsuit Aims to End to All Gene Patenting. Will it Succeed?


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    The ACLU has launched a suit against the holder of the breast cancer gene patent with hopes of stopping the practice of gene patenting. Skloot covers the suit, its history, and its odds of success.

    Tuesday, March 24th, 2009

    “Seeing Eye Horse” – Good Morning America Segment on Non-Canine Service Animals Misses Key Issues


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    Good Morning America’s segment today on non-canine service animals was a classic oversimplification of a complex story that makes one of the most common media mistakes: it focuses on the quirk without getting into any of the serious issues involved.

    Saturday, February 28th, 2009

    Producer Seeks Non-Canine Service Animal Users for Documentary Film


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    A documentary film is being planned based on my recent NYTimes Magazine story on the use of non-canine service animals. It’s producers are looking for subjects to interview.

    Saturday, February 7th, 2009

    Science in Jeopardy — Protest Proposed Funding Cuts


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    The new stimulus package includes serious cuts to science funding (like nixing 100% of the National Science Foundation’s $$).  This — as an old family […]

    Thursday, February 5th, 2009

    DOJ Withdraws ADA Changes That Would Ban Non-Canine Service Animals


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    The Department of Justice has withdrawn its proposed ADA regulations that would have banned the use of assistance monkeys, birds, miniature horses, etc.

    Tuesday, February 3rd, 2009

    New DOJ Head

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    A few hours ago, Joe Biden swore in the new head of the Department of Justice — the first African American Attorney General in history. […]

    Tuesday, January 20th, 2009

    ADA Changes Not Approved Before Obama Innaguration


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    Because the sweeping DOJ changes to the Americans With Disabilities Act were the only Bush Administration regulations under review that weren’t approved before Obama was inaugurated as president today, monkeys, miniature horses, parrots, ducks and everything else can legally qualify as service animals (for now)

    Saturday, January 17th, 2009

    DOJ’s Proposed Ban of Non-canine Service Animals Is Bad News for Disabled Muslims


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    The question of service animal species also turns out to be a question of religious freedom

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    The Henrietta Lacks Foundation strives to provide financial assistance to needy individuals who have made important contributions to scientific research without their knowledge or consent.