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    Archive for the ‘Genetic Privacy’ Category

    Thursday, December 31st, 2015

    Controversial New Regulations Proposed to Require Consent for All Tissue Research. Rebecca Skloot’s new OpEd Urges Action

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    Your cells and genetic information can be used in research without your knowledge — this happens all the time. It leads to important medical advances […]



    Saturday, October 31st, 2009

    U of Akron Requires DNA from Potential Employees; Feds Open Public Comment Period on Federal Law Protecting DNA

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    An adjunct instructor at the University of Akron quits when he’s told he must submit to DNA testing; the government drafts new proposed legislation protecting the privacy of genetic information – it’s open for public comment until the end of November.



    Saturday, October 3rd, 2009

    The Immortal Life of Henrietta Lacks Gets Starred PW Review and a Shiny New Cover

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    In a starred pre-publication review, Publishers Weekly calls The Immortal Life of Henrietta Lacks (about HeLa, by yours truly), “a remarkable debut … a rich, resonant tale of modern science, the wonders it can perform and how easily it can exploit society’s most vulnerable people.” See post for full review, and the book’s shiny new cover!



    Thursday, January 22nd, 2009

    Covert DNA Testing Raises Privacy Concerns

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    DNA from thousands of people being tested without their knowledge. Suspicious spouses are sneaking DNA samples from their partner’s underwear; men and women are covertly testing their children to find out if they’re really biologically related, and several companies have cropped up to help them.



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    The Henrietta Lacks Foundation

    The Henrietta Lacks Foundation strives to provide financial assistance to needy individuals who have made important contributions to scientific research without their knowledge or consent.