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    April 5, 2010

    Immortal Life of Henrietta Lacks FAQ#1: How did Skloot learn about HeLa cells?


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    Immortal Life of Henrietta Lacks.small.jpgI mentioned a while ago that I’ll be posting answers to FAQs about my book, The Immortal Life of Henrietta Lacks, as an ongoing series on this blog.

    I thought I’d start the FAQs with one of the most commonly asked questions: How did you learn about Henrietta and the HeLa cells, and why did they grab you the way they did? Here is the answer, which I also posted about over on Powells.com’s book blog this last week as part of a little guest blogging stint:

    I first learned about Henrietta Lacks in the late 80s, when I was 16 and sitting in a basic biology class at Portland Community College
    (PCC). My teacher, Donald Defler, mentioned HeLa cells, saying they
    were one of the most important tools in medicine, then almost as an
    aside, he said, “They came from a woman named Henrietta Lacks, and she
    was black.” That was the moment I became obsessed with Henrietta. I
    went up to Defler after class and started asking questions about
    whether her family knew about the cells (they didn’t) and what her race
    had to do with them being alive, but he stopped me, saying no one knew
    anything else about Henrietta, just her name and her race.

    Defler, being the good biology teacher he was, suggested I do some
    research to see if I could find any information about Henrietta Lacks.
    “Write up a little summary of what you find and I’ll give you some
    extra credit,” he told me. Several months ago, when I got the
    pre-publication proofs of my book, I called Defler and (much to his
    surprise) told him about how that moment in his biology class more than
    20 years ago had started me on a path that ended with The Immortal Life. I sent him an advance copy and said, Here’s my extra credit summary, Mr. Defler…it’s a few decades late, but I
    have a good excuse: the information was really hard to find …

    The scene of me learning about Henrietta Lacks for the first time in
    my PCC classroom is in the prologue of the book (which you can read
    online here). But what’s not in the prologue is the backstory behind why Henrietta’s story grabbed me.

    The year I learned about Henrietta Lacks was the same year
    my father got sick with a mysterious illness no one was able to
    diagnose. He’d gone from being my very active and athletic dad to being
    a man who had problems thinking, and he spent all of his time lying in
    our living room because he couldn’t walk. It turned out that a virus
    had caused brain damage, and he eventually enrolled in an experimental
    drug study (he’s since written several books
    about his experience living with brain damage). Since my father was too
    sick to operate a car, I drove him to and from the hospital several
    times a week and sat with him while he got treatments. I spent much of
    my 16th year sitting in a hospital watching my father and other
    patients be used as research subjects. In the midst
    of that, when Defler mentioned that Henrietta’s cells had been growing
    in labs decades after her death, the first questions I asked were, Did she have any kids? How did they feel about her cells being used in research? I think I asked those questions in part because I was wrestling with the emotions associated with watching my father’s
    experience as a research subject.

    3 Responses to “Immortal Life of Henrietta Lacks FAQ#1: How did Skloot learn about HeLa cells?”

    1. Strict Standards: Only variables should be assigned by reference in /home/n0ld3odkhcxn/public_html/wp-content/plugins/subscribe-to-comments/subscribe-to-comments.php on line 590
      Wendy bodner says:

      I want to tell you that I thoroughly enjoyed your book. It was a eye-openning and riveting account. I cannot stop talking about and recommending this book to everyone I meet. Thank you for your tenacity and technical skill in writing this book. My husband and I fought (not literally) to read the book at the same time.
      Wendy Bodner

    2. Strict Standards: Only variables should be assigned by reference in /home/n0ld3odkhcxn/public_html/wp-content/plugins/subscribe-to-comments/subscribe-to-comments.php on line 590
      Ed says:

      Keith, actually *reading* books works much better than just smashing your fists and face against a keyboard in a fugue of ignorance. And it’s HENRIETTA Lacks. The name only appears 13 times in this post alone. You would know this if you’d actually read it.

    3. Strict Standards: Only variables should be assigned by reference in /home/n0ld3odkhcxn/public_html/wp-content/plugins/subscribe-to-comments/subscribe-to-comments.php on line 590
      Keith Beatty says:

      Cell culture scientists had been working tirelessly for decades in the attempt to establish an immortal cell line. Countless human cell samples were cultured and failed. Success owes not to Helen Lacks but to the years of 16 hour days put in by teams of scientists who work for the love of knowledge and the good it can bring.

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